EN-RBD - Home Page

This website arises from the project

"European Network of Rare Bleeding Disorders (EN-RBD)"

funding from the European Union, Public Health Programme.



University-of-Milan	European-Commission

Last Updated ( Friday, 23 July 2010 17:59 )

On July 10-14, 2010, the Hemophilia World Congress, World Federation of Hemophilia (WFH) was held in Buenos Aires, Argentina.

Prof. Flora Peyvandi, from the University of Milan, presented the state of the art of the European Network of Rare Bleeding Disorders (EN-RBD) project ( Abstract 1 )

Dr Danijela Mikovic, from the Haemostasis Department and Haemophilia Center, Belgrade, Serbia, presented data on clinical manifestations in women with rare bleeding disorders obtained by the analysis of information on patients entered in the EN-RBD database ( Abstract 2 )

Moreover results on the new bleeding score specifically designed for rare bleeding disorders were presented as a poster ( Abstract 3 )

56th Scientific and Standardization Committee (SSC) meeting of the International Society on Thrombosis and Haemostasis (ISTH)

On May 22-25, 20010, 56th Scientific and Standardization Committee (SSC) meeting was held inCairo, Egypt .

Prof. Flora Peyvandi, from the University of Milan, presented the progresses of the European Network of Rare Bleeding Disorders (EN-RBD) project and the preliminary results obtained using a bleeding score system, specifically designed for RBDs, during the

Scientific and Standardization Committee (SSC) on Factor VIII and Factor IX

Scientific and Standardization Committee (SSC) on von Willebrand factor

Moreover Prof. Flora Peyvandi presented data on miscarriages in women affected with RBDs, during the

Scientific and Standardization Committee (SSC) on Women

Last Updated ( Tuesday, 08 June 2010 19:01 )

EN-RBD database 2.0

the new release of the database has been released on october 12 2009

- the Bleeding Score section has been totally revised on the basis of a Bleeding Score new model

The network objective now is to complete all the current data and enter more patients in order to obtain data analysis in time for our next workshop on January 15th.